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We are asking Patient Organizations to partner with us to help share our goals with their members and when the time is right - to reach out to the FDA and Congress to help implement new regulatory policy that will put Orphan Treatments on the FAST TRACK.

Recent Updates

Sep
25

Rare Disease Patient Voices Bring Change To The Clinical Trials Process 21st Century Cures

From an article in Forbes by Steve Smith:

The voices of rare disease patient advocates play a unique and critical role in the modernization of the clinical trials process, which advocates see as antiquated and unable to sufficiently address their unmet medical needs. Read More

Sep
10

Cure The Process Launch Webinar October 29th General

Join the EveryLife Foundation for Rare Diseases and Dr. Emil Kakkis as we launch the Cure The Process 2 Initiative